We all struggle with body image from time to time. But what if your actual perception of how you (and things around you) look is being affected? We explain more about Alice in Wonderland syndrome, how it affects different people, and where you can find help to stop from falling down this rabbit hole
It can be hard to remember sometimes, but we each perceive the world in our own unique way. While some differences are more common – we’ve all heard of colour blindness – others can occur much less frequently.
Despite the whimsical name, Alice in Wonderland syndrome (AWS), also known as Todd’s syndrome, is a rare neurological disorder. First discovered in the 1950s by British psychiatrist Dr John Todd, and named because its symptoms resemble experiences that happened to Alice in Lewis Carroll’s famous novel, the syndrome can cause temporary changes in your visual perception, body image, and how you experience time. It can lead people to feel like they are physically larger or smaller than they really are, or that the furniture or room around them is shifting to become nearer or further away.
Mostly found in children, there’s still a lot we don’t know about this rare neurological disorder, why it happens, or what we can do to fix it. But, as with most wellbeing-related matters, with awareness comes some relief in itself.
How does AWS affect people?
Alice in Wonderland syndrome can affect your vision, hearing, and touch, as well as your perception of time – making you think it is passing faster or slower. Exactly how it can affect you varies from person to person, as well as episode to episode.
Typically, these episodes can last anywhere from a few minutes to half an hour, and common symptoms you may experience include:
- Migraines
- Size, perceptual, sound, or time distortion
- Loss of coordination or limb control
Some people also experience a feeling of disconnection from their body, thoughts, feelings, and/or environment, which can be unsettling.
While children and young adults are thought to experience it more often, some experts think that adults may actually experience AWS more than is reported. As we often see with mental health concerns, stigma could be playing a role here, causing people to not reach out due to worries about describing what they are seeing, and being afraid it might be mistaken for hallucinations, or dismissed completely.
What causes AWS?
The actual causes of Alice in Wonderland syndrome aren’t currently known. Some experts believe AWS may actually be an aura (an early sensory indication of a migraine), or a rare type of migraine in and of itself. Other researchers believe it could be caused by head trauma, infections, or unusual electrical activity in the brain affecting blood flow to the parts of your brain that process your environment and visual perceptions.
Other possible causes are thought to be stress, epilepsy, stroke, brain tumour, or cough medicine. Those with a family history of AWS or migraines&